Tuesday, October 30, 2007

Science question/theory

Dear Dr. Buckner:

Please forgive the usage of this address (listed on the morgellons.org website as a link for physician inquiries) as I myself am not a Doctor, rather, (I believe) a sufferer of this disease/syndrome. At present I can think of no more appropriate place to pose my question and present my theory to you.

After having done somewhat extensive research online myself, I am drawn to the theory that Morgellon's Syndrome is actually a "symptom" if you will, of a "hidden" possibly antibiotic resistant bacterial infection, such as Chlamydia Pneumonia. (as theorized on the morgellonstreatmentsteps.com website)

Pursuant to that idea, I would like to pose the additional theory that the "Morgellon's parasite", if indeed there is such a thing, could actually be present in the body of the Morgellon's sufferer due to the presence of bacteria inside the cells? (Chlamydia Pneumonia specifically) Could these "parasites" simply be feeding on any bacteria present, internally and externally?

My concern is that by treating the symptom, ie. attempting to eliminate this parasite from the body (colliodal silver, salt diet, peroxide/salt baths, etc.), rather than the cause, could this not possibly have the unintended long term effect of strengthening the underlying bacterial infection, and thus do more harm than good?

Do you feel this idea has credence or has your research already disproved this theory or led you in other directions?

Sincerely,

David Franklin

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From: Douglas Buckner
Date: Wed, Oct 31, 2007 at 7:34 AM

Thank you for your email. We have no idea what causes Morgellons.
Your theory is as valid as anyones. Sometimes, bacteria and parasites
work together. For example, with Microfilia, patients are treated
with both antibiotics for the bacteria that the parasite lives on plus
antiparasitics.

We need research to answer all of the questions surrounding this
disease. I hope that you will consider making a donation.

Thanks
Douglas Buckner

Associate Director
Morgellons Research Foundation

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From: David Franklin
Date: Sat, Nov 3, 2007 at 5:16 AM

To: Friends, family and colleagues


I have forwarded the response (above) that I got back from the Morgellon's Research Foundation in case you are interested in reading it.

I am very glad that Dr. Buckner was able to take the time to respond. (most Doctors I have emailed thus far, seeking help and/or information about morgellons have not bothered to respond, and the ones I have been to see, none of whom had even HEARD of Morgellons, have all misdiagnosed me, often as delusional) I continue to be discouraged however, by the complete lack of any kind of helpful information regarding what I should do to remedy my steadily worsening condition, even from a source like this that professes to be an authority in the area of Morgellons.

After all my efforts, I am still at square 1, having accomplished nothing whatsoever.

Best regards,
David Franklin

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From: S.B.
Date: Sat, Nov 3, 2007 at 6:09 AM

David,

It is a fascinating, out of the box, theory. It seems to me though, that step one is going to have to be proving that the disease exists in the minds of the skeptical. Has anyone done genetic or molecular testing on the fibers to ascertain their content and origin? It would occur to me to start looking at other known organisms that produce fibers as a byproduct of their existence, i.e., spiders, silkworms, and so forth. And then to posit the existence of microbial relative capable of doing the same. Has antibiotics been successful in treating or curing any known instance of Morgellon's? If not, it would seem more likely a virus, in which case we'd be back to step one. (As far as I know virus don't produce byproduct.) I suspect the research keeps you engaged and makes you feel like you are making progress; keep it up and don't get discouraged.

S

P.S. Did you get the CDs I sent?

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From: David Franklin
Date: Sat, Nov 3, 2007 at 7:00 AM
To: S.B.

Hi S,
I've missed our chats. I had meant to thank you for the cds on several occasions, but i lose my train of thought so easily it makes it challenging to complete such a goal. (Thank you!)

Yes, my theory is based on the findings outlined on this website:
Apparently morgellons symptoms dissipate after a heavy regimen of antibiotics targeted towards eradicating the difficult to detect, and even more difficult to defeat, "Chlamydia Pneumonia".

I sure would love to get on some of those antibiotics, but have thus far been unsuccessful in finding a morgellons literate doctor that will see me without charging a hefty fee up front. (as I have no money to pay them for their services)

d

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From: S.B.
Date: Sat, Nov 3, 2007 at 9:11 AM

Aren't your parents in Arizona? Have them run down to Mexico. You can buy antibiotics over the counter down there. (It is possible to do that in FREE countries.)

--S.

----------
From: Me
Date: Sat, Nov 3, 2007 at 9:30 AM
To: S.B.

An interesting idea. Thanks for the suggestion. Are ALL antibiotics available without prescription? it would probably be easier for me to make it down to Tijuana though, than for them to head below the border themselves. (they are very busy, and it is still a 5 hour drive from Phoenix to Mexico)

It also occurs to me that my father lives in Las Cruces, NM which is less than 2 hours from Mexico, AND his job takes him all over the region.

Then there is the issue of money, of which I have none (nor does my father presently), but still it is an idea to pursue. I wonder how cheap meds are in Mexico?

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From: S.B.
Date: Sat, Nov 3, 2007 at 11:11 AM

Meds are pretty cheap. As for which ones are available over the counter, and how easy it is to get them back over the border, I don't know. Also I suppose there is the issue the quality control. But check it out. I know on the ship that people claimed they would stock up on antibiotics when they were in Cozumel. I never bought any myself, so this is just second hand (rumor I suppose).

--S.

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From: (The site owner of morgellonstreatmentsteps.com)
Date: Sat, Nov 3, 2007 at 12:55 PM

Hi David,

They are trying to get closer to the answers. Here are 2 areas they are focusing on:

1. actinomycoses and nocardiosis
2. microfilaria
Regarding the antibiotic, antifungal, antiparasitic protocol...

At this point it is not certain whether the meds are killing the actual Morgellons organisms themselves or possibly the pathogens (bacteria, fungi, etc) that may be attracting the Morgellons organisms to a person's body in the first place...this attraction might be due to the pathogens being a potential source of food, reproduction, or who knows what else.

The treatement method outlined in the Vanderbilt protocol targets the underlying infections (chlamydia, babesia, borrelia, etc). Many people have reported that once they get these infections under control, their Morgellons symptoms also resolve. It can take years of continual oral medication treatment before adequate results are achieved. Some individuals take 3-5 years of continual oral treatment before their symptoms resolve.

There are individuals who have searched the internet and found ways to obtain medications from pharmacy sites and veterinarian sites. However, it is not recommended that people self medicate. It is very important to obtain adequate lab testing and monitoring from a healthcare provider.

You will find a list of doctors below who have been helping patients with Morgellons symptom

UNITED STATES:

Arizona:

Stephen Fry, MD
15720 N Greenway Hayden Loop
Scottsdale, AZ 85260
480-991-4655
Family Practice
http://www.ucomparehealthcare.com/drs/arizona/general_practice/Fry_Stephen.html
http://www.yelp.com/biz/tzNKOYkJ9vpTGygEdX_Vig

Amin, Omar, M.D.
Tempe, Arizona
http://parasitetesting.com
email: omaramin@aol.com
480 767-2522

California:

Gruenn, Hans M.D.
2211 Corinth Ave. #204
Los Angeles, CA 90064
Phone: 310-966-9194
http://www.drgruenn.com/index.asp?page=aboutdr.gruenn
Email: manager@drgruenn.com

Harris, Steven J. M.D.
Family practice
Board Member of California Lyme Disease Assoc (CALDA).
200 Providence Mine Rd, Suite 110
Nevada City, CA 95959
530-470-9184

Dr. W. John Martin, M.D., Ph.D.
Burbank, CA
http://www.24-7pressrelease.com/view_press_release.php?rID=23911&tf7sid=6f8a60b46a4a67391296ce67de6c68bb
http://www.s3support.com/ProgressiveMedicine.pdf
email - s3support@mail.com

Savely, Virginia (Ginger) R.N., F.N.P.C.
TBD Medical Associates
450 Sutter Street Suite 1504
San Francisco, CA 94108
lymesf@gmail.com

Spencer, Edward M.D. (Neurology)
4 Ashley Ct.
Novato, CA 94945
Office - 707 763 6854
Or
47 Maria Dr., Ste 811 B
Petaluma CA 94954
Cell - 415 250 1835
edspencer3000@comcast.net
edspencer3000@mindspring.com
(Concerned about many conspiracy issues)

Stricker, Raphael B. M.D. (member of MRF)
Union Square Medical Associates
450 Sutter Street Suite 1504
San Francisco, CA 94108
Phone: (415) 399-1035
Fax: (415) 399-1057

Yang, Theresa, M.D., FAAFP
10201 Mission Gorge Road, Suite A
Santee, CA 92071
(619) 596-4963
http://www.dyfc.org/yangaddress.htm
(Santee CA is in San Diego’s east county)

Kurt N. Woeller, D.O.
Tracy Tranchitella, N.D.
http://www.mystillpoint.com/index.html
(951) 693-2267 or info@mystillpoint.com
32605 Highway-79South,
Suite 201
Temecula, CA. 92592
Phone: (951) 693-2267
Fax: (951) 693-2268

Dr. Rick Bierman L.AC
625 Arlington Circle
Novato, CA 94947
415-302-4397
accudoc1@comcast.net
rickb@healthfreedomsolutions.com
http://healthfreedomsolutions.com/lymedisease.htm#proto

Colorado:


Keith Bodrero, DO and Mindy Goodwin, PAC
5780 North Carefree Circle
Colorado Springs, CO
719-550-9100
Family Practice
Note: Dr. Bodrero and Mindy Goodwin, his PA were both trained by Dr.
Harvey on ways to treat Morgellons disease. Mindy was a PA in Dr.
Harvey's office for 2 years prior to the office closing. Mindy is very
familiar with successful ways to treat Morgellons patients. Both
individuals will be in contact with Dr. Harvey if they need his
expertise. You can contact them to see if they are accepting new
patients.
http://www.healthgrades.com/doctors-directory/profiles-md/Dr-Keith-Bodrero-DO-47EA7DD3

Connecticut:


Jones, Charles, M.D.
Hew Haven, CT
(Pediatrics)
Phone: 203-772-1123
Phillips, Steven M.D. familiar with Cpn
944 Danbury Road
Wilton, CT 06897
(203) 544-0005
Past President, International Lyme and Associated Diseases Society (ILADS)
Website: www.ILADS.org
http://www.ctlymedisease.org/bio.htm

Frederick Browne, MD
New Milford Hospital
21 Elm Street
New Milford, CT 06776
860-210-5007 http://www.newmilfordhospital.org/script/patientinfo_directory_results_detail.asp?PhysicianID=1876
http://www.newmilfordhospital.org/services/services_medical.htm#infectious

Florida:

Schaller, James L. M.D., MAR (member of MRF)
http://www.personalconsult.com/
Naples, FL – 239-263-0133
Tampa, FL – 813-909-8009
Physician and Author

Schwartz, George, M.D.
Boynton Beach, FL
http://www.healingresearch.org/news.html
http://www.healingresearch.org/drschwartz.html
drgschwartz@healingresearch.org
colleenjill@healingresearch.org
Phone: 505-424-9467
Cell: 505-610-8243

Sastry, Vatsala, M.D.
15435 Cortez Blvd.
Brooksville, FL 34613
(352) 799-2294
Or
2105 Highway 44 W
Invernness, FL. 34453
(352) 637-5000

Uppal, Neelam, M.D.
5840 Park Blvd.
Pinnelas Park, FL. 33781
(727) 547-5232
Infectious Disease and Internal Medicine
Practices in Largo, FL, Pinellas Park, FL, and Saint Petersburg, FL

Vitelli, Mario, Ph.D., LA.C
Physicians Health Center
420 SE 17th Street
Ocala, FL 34471
352-368-1099
352-351-5343 (Physicians Health Center)
Email: sciodrcarol@yahoo.com
Board Certified Biofeedback Specialist
Interested in examining and treating individuals with Morgellons symptoms

James E. Lemire, MD, PA
9401 SW Hwy 200 Bldg 90 Ocala, FL 34481-9612
Phone 352-291-9459
FAX 352-291-9465
office@LemireClinic.com
http://www.lemireclinic.com/index.htm

Georgia:

Susan E. Kolb, M.D., F.A.C.S.
4370 Georgetown Square
Atlanta, GA 30338
Phone: (770) 457-4677
http://www.plastikos.com

Michigan:


Ledtke, Michael A. M.D. (member of MRF) will only see patients who live in MI
150 Plymouth Rd
Saginaw, MI 48603
(989) 793-7779

Nevada:

Arezo Maria Fathie, MD
2649 Wigwam Pkwy #101
Henderson, NV
702-407-9994
http://www.generationsmedicalcenter.com/medicalspa/acne-index.html
E-mail: getwell@generationsmedicalcenter.com

New Jersey:


Bransfield, Robert M.D.
Red Bank, NJ
Phone: 732-741-3263
http://www.mentalhealthandillness.com/
email: rb@mentalhealthandillness.com
rbransfield@monmouth.com
http://pn.psychiatryonline.org/cgi/content/full/42/11/24-b

Emilia Eiras MD
702 Brewers Bridge Road
Jackson, NJ
732-905-9630
http://www.healthgrades.com/directory_search/physician/profiles/dr-md-reports/Dr-Emilia-Eiras-MD-665BEC97.cfm

New Mexico:

Daniel Kinderlehrer, MD
4 Torreon Place
Santa Fe, New Mexico
505-984-9700
http://www.healthgrades.com/directory_search/physician/profiles/dr-md-reports/Dr-Daniel-Kinderlehrer-MD-E244B855.cfm

Canfield, Russell M.D. PC
500 Don Gaspar Ave
Santa Fe, NM 87505
(505) 795-7111
Clinical assistant professor
University of New Mexico School of Medicine
Board Certified Holistic Medicine & Family Practice

New York:

Dr. Pratima Raichur - Aruyvedic doctor (India)
Pratima Ayurvedic Skincare Spa
110 Greene St., Suite 701
New York, NY 10012
(212) 581-8136
(Between Prince and Spring Streets)
www.pratimaskincare.com
email: orders@pratimaspa.com

Bernard Raxlen, MD
123 W 79th St
New York, NY 10024
212-799-2377
http://www.raxlen-lyme.com/

Horowitz, Richard I. MD
Hyde Park, NY
Internist, CAM – Lyme
845-229-8977
914-229-8977
http://www.nyema.org/nyema_gnl/horowitz_bio.htm
Board Certified, Internal Medicine, Former Assistant Director of
Medicine, Vasser Brothers Hospital, Specializes in diagnosis and
treatment of complicated Lyme disease and other tick-borne illnesses.
First Vice President of the International Lyme and Associated Diseases
Society, Inc. (ILADS)…familiar with Morgellons disease. You can call
to see if he is accepting new patients.

Daniel Cameron MD, MPH
Lyme Disease Practice and Research
175 Main Street
Mt. Kisco, NY 10549
Tel: 914-666-4665
E-Mail: Cameron@LymeProject.com
http://lymeproject.com/
Internist, epidemiologist, lyme
914-666-4665

Ken Leigner, MD PC
Internal & Critical Care Medicine
Lyme Borreliosis & Related Disorders (ALS Focus)
8 Barnard Road
Armonk, New York 10504
914-273-2121
http://www.canlyme.com/leigner.html

North Carolina:

Jemsek, Joseph M.D.
14330 Oakhill Park Lane
Suite 201
Huntersville, NC 28078
Phone: 704.987.2111
Fax: 704.987.2113
http://www.jemsekspecialty.com/
http://web.archive.org/web/20050205034620/www.jemsekclinic.com/lymedisease.php

Ohio:


Dr. James R Overman, M.A., M.H., M.Div., N.D., C.N.H.P.
Precision Herbs, LLC
9804 Township Road 89
Killbuck, OH 44637
330-276-6511
330-276-0411 fax
http://www.precisionherbs.com/index.cfm?fuseaction=page.display&page_id=20

Oklahoma:

Casey, Rhonda, D.O.
(Pediatrics)
3345 S Harvard, Bldg 200
Tulsa, OK 74135
918-742-8160

Werner, Carla, M.D.
(405) 755-1970
13321 N Meridian Ave Ste 406
Oklahoma City, OK 73120

Oregon:

Raffety, Stacey, N.D. (Dr. of Holistic Medicine)
Tigard Holistic Health Clinic – Oregon
11930 SW Greenburg Road
Tigard, Oregon 97223
Phone: (503) 639-1712
http://www.tigardholistic.com/faq.htm

Pennsylvania:

Bach, Gregory P., D.O., P.C.
Colmar, PA
(Internist) Family Practice
Phone: 215-997-9421

Texas:

Boulden, Kelly, M.D.
Fibromyalgia & Fatigue Center of Fort Worth
4521 S. Hulen Street, Suite 200
Ft. Worth, TX 76109
Toll-free: 1-866-443-4276
Phone: 817-924-1010
Fax: 817-924-6060
http://www.fibroandfatigue.com/aboutus.php

Curti, Tony, M.D.
806-445-9667 office
P O Box 65601
Lubbock, TX 79464

Hardwicke, Alan M.D.
425 Cypress St
Abilene, TX 79601
325-673-4488

Holt, Byron B. M.D., F.A.C.O.G.
Womans Healthcare Center of Houston
Professional Building II
909 Frostwood, Suite 110
Houston, TX 77024
713.365.2900
http://www.whcch.com/holt.html

Hamid Moayad, D.O.
1305 Airport Frwy., #311
Bedford, TX 76021
(817) 540.3388
Neurology, Lyme

Parrish, Mary, NP
Del Rio, TX
Phone: 830-774-4094

Stevens, James D.O.
Fibromyalgia & Fatigue Center of Dallas
12740 Hillcrest Road
3 Hillcrest Green Building, Suite 100
Dallas, TX 75230
Toll-free: 1-866-443-4276
Phone: 972-980-2300
Fax: 972-980-3730

http://www.fibroandfatigue.com/aboutus.php
Strickland, Carol, M.D.
Internist
St. Joseph Hospital/Medical Building
Houston, TX
(713) 571-7009.

Washington:


Ames, Geoffrey S. M.D., PLLC (member of MRF)
P.O. Box 430
Richland, WA 99352
Phone: 509-943-3934

Klinghardt, Dietrich MD, PhD & AANT
Bellevue, WA (near Seattle)
Lyme Specialist
aant@neuraltherapy.com
425-637-9339
425-822-2509
425.688.9220
425 688 8818
To read more about him refer to this site:
http://www.healthfreedomsolutions.com/forums/viewtopic.php?t=60
http://www.dstressdoc.com/Morgellons/medical_approaches.htm

CANADA:


Riddle, Chelsea N.D. and Klassen, Joe N.D. (both Naturopathic Doctors)
Fish Creek Naturopathic Medicine
2114-380 Canyon Meadows Dr SE
Calgary, Alberta
Canada
403 271-4500
Emails:
drjoe@fishcreek.ca
drchelsea@fishcreek.ca

Miklossy, Judith MD, PhD
Neuropathologist, board certified in neurology and psychiatry with
experience in molecular biology. She has been involved in the research
of Lyme disease for approximately 20 years.
University of British Columbia, Department of Psychiatry,
Kinsmen Laboratory of Neurological Research,
Vancouver, B.C. V6T 1Z3, Canada
E-mail miklossy@astro.temple.edu
http://www.samento.com.ec/sciencelib/4lyme/Bb_Alzheimer.pdf
http://stroke.ahajournals.org/cgi/content/abstract/33/8/1986
TEL: 215-204-0678
http://www.temple.edu/cnvcb/index.html

UNITED KINGDOM:

Dr. Andrew Wright
Dalton House, 33 Leigh Road,
Westhoughton, Bolton
BL5 2JE
UK
Tel No 01942 819301
http://www.lymediseaseaction.org.uk/conf2006/speakers.htm
thefatigueclinic@yahoo.co.uk

Dr. David Owen BSc MB BCh LLM
Place of Private Practice:
30 The Parade, Cardiff. CF24 3AD
UK: 02920 486168 or
outside: + 44 (0) 2920 486168.
http://www.drowen4lyme.co.uk/
http://www.lymediseaseaction.org.uk/conf2006/speakers.htm


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From: Mom
Date: Sat, Nov 3, 2007 at 9:12 PM

David

It sounds like the "Morgellon's Research Foundation" has not yet been able to find out anything that would be helpful, in which case they are being honest with you. Certainly they can't diagnose or treat anyone over the internet, and obviously they won't do so unless you are their patient and are paying them (or have an insurance company that will pay them). It was nice of Dr. Buckner to respond to you, as you said, even if you still feel frustrated by his response.

Love, Mom

(Did you get the second Halloween card I sent you?)

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From: Me
Date: Sat, Nov 3, 2007 at 11:00 PM
To: Mom

Yes, I got the 2 cards & the $6 you enclosed a couple days ago. Thanks! Wow! 2 Halloween cards AND $6! What a very odd and unexpected (yet very appreciated) surprise in the mailbox! Was that intended as busfare so I can get to the G.A. Office this week? Anyway, whatever the reason that is most likely what it will be used for! Thanks! It will definitely come in handy!

I intend to go on Monday and re-apply for caap now that the 60 day penalty period has passed. I got a response from the lady who runs morgellonstreatmentsteps.com who I forwarded Dr. Buckner's response to. I will forward it to you.
My friend S suggested going to Mexico to buy the recommended antibiotic regimen for eliminating Chlamydia Pneumonia (avail without prescription, and cheap apparently).

BTW, It appears there is a Dr. in your area, out near the mayo clinic, that treats morgellons. Could you check with him to see if he will see me in my present financial status? Maybe I can come home for Thanksgiving for a couple weeks, get diagnosed, and begin some type of treatment regimen if so! When I come back, (presumably with my diagnosis in hand) perhaps that would be enough to begin the process of applying for disability?

d

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